Welcome to the Ontario Caregiver Organization

Welcome to the Ontario Caregiver Organization


If you are a family member, partner, friend or neighbour providing personal, social and psychological support to someone in need, you’re not alone.

3.3 million people in Ontario are caregivers. Their role is 24 hours, seven days a week. Caregivers have voiced their frustration; they find it hard to find the information they need and navigate a complicated system. Caregivers have made it clear that they are overwhelmed and struggling to cope.

The Ontario Caregiver Organization was created in the Spring of 2018 as an independent corporation that functions arms-length from government. Our goal is to ease the stress and burden that caregivers experience when caring for a loved one.   

The Ontario Caregiver Organization has a clear mandate, as outlined by the Ministry of Health and Long Term Care.

We will:

  • Support caregivers by being the one point of contact for information about existing services and supports.
  • Work to bridge the range of these services and supports so all caregivers have the same access, regardless of age, diagnosis or where they live. 
  • Create greater awareness about the role of caregivers, the challenges of being a caregiver and the contribution they make to their loved one, their community and the province of Ontario.
  • Advocate for caregivers, healthcare and service providers who support caregivers, across the province. We will ensure the caregiver’s voice is heard and helps to inform policy and legislation.  

The Organization’s mandate is not to duplicate existing services, but to complement them and to build new services where appropriate.

While this work will take time, we’re excited to roll up our sleeves and get started. The programs and services we list on our website is an initial list of some of the services available for Caregivers in our province. Over time, more resources will be added. Where we see gaps in services, The Ontario Caregiver Organization will work to ensure all caregivers have fair access to what they need.  

Learn more about what the Ontario Caregiver Organization is working on.  


Getting Started

The Ontario Caregiver Organization is in the start-up and launch phase. We are setting up the infrastructure of the organization to ensure a strong foundation for success. Here are just a few things we’re working on over fall/winter 2018:

  • Public consultations with caregivers. As our work begins, we want to ensure all caregivers across the province have an opportunity to shape the organization’s direction and priorities.
  • Establish a Caregiver Advisory Structure. Caregivers who wish to act in an advisory role will have the opportunity to provide feedback and inform the work of the Ontario Caregiver Organization. We want this to be easy for caregivers; we’ll look at innovative ways to use technology to engage with caregivers, while also providing opportunities to bring caregivers together to collaborate and share feedback.
  • Enhanced bi-lingual website – our website will provide a reliable way for caregivers to access existing services and supports. Expanding on this is one of our early priorities.
  • Expand our current Board of Directors.
  • Recruit a permanent CEO.
  • Develop our strategic plan.

Our collective opportunity is to create an organization for caregivers that can:

  • Draw on the great work that is currently being done to improve the caregiver experience and find ways to make these services and supports more broadly available.
  • Identify service and support gaps and find new and creative ways to fill these gaps.
  • Help caregivers of all ages, including young caregivers who are as young as 15 years old, find the information they need.
  • Identify siloes and create opportunities to break down those siloes.
  • Promote policies that span ministries because the needs of caregivers cannot just be met by the Ministry of Health and Long-Term Care.
  • Support, align and maximize research that is already available about the caregiver experience so that we are respecting caregiver’s time and not duplicating research that currently exists. Where there are gaps in research, the Ontario Caregiver Organization will provide innovative ways to gather feedback and insights from caregivers.

© 2018 The Ontario Caregiver Organization